The Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST), and other rare diseases, through patient-powered research, education and empowerment, and global advocacy efforts.
Other Programs Supported by The Life Raft Group:
PATIENT
Leverage patient perspective to drive innovative solutions in cancer research.
POWERED
Educate and empower patients to take a larger role in their care.
SCIENCE
Accelerate research outcomes through collaborative efforts.
FOR LIFE
Increase access to effective treatments worldwide.
Real World Evidence In Action
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to GIST research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
Did you know that GIST is actually a family of cancers? Learn more about the science of GIST.
Dr. Monica Anderson
Diagnosed in 2012 with Adult GIST.
Bella Rocco
Diagnosed in 2009 with Pediatric
(SDH-deficient) GIST.
HELP US SAVE LIVES
The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our GIST patient registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.
News
Life Raft Research Award Recipients 2025
Our Summer Splash Match raised $60K which was awarded to three GIST researchers - Dr. Inga-Marie Schaefer, Dr. Matthew Hemming, and Dr. Jason Sicklick.
Patient Perspective on Testing – Survey Highlights
Survey highlights show that most GIST patients receive mutational testing, but awareness of ctDNA testing remains low despite strong interest.
Health Equity Council: Continuing the Legacy of a Beloved Member
The Life Raft Group’s Health Equity Council honors Martina’s legacy while working to close care gaps and expand patient access to resources.
Remembering Martina Will
Martina Will, a loving mother and dedicated advocate, battled GIST with strength and grace, leaving behind a lasting legacy of resilience, and devotion.
A Memorable Evening at Water of Life
The Water of Life whisky tasting event celebrated rare pours, community, and support for The Life Raft Group’s mission for GIST patients.
Patient of the Month – October 2025: Sandra Cipriani
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Sandra Cipriani shares her story.
Health Equity Council Update 10-3-25
The Life Raft Group Health Equity Council meets biweekly to discuss strategies for ensuring that all patients have equitable access to healthcare and resources. This is an update from the past two meetings.
GIST Day of Learning Boston 2025
Saturday, September 27, 2025, The Life Raft Group hosted a GIST Day of Learning (GDOL) at Dana-Farber Cancer Institute in Boston.
GLOBAL PARTNERS & AFFILIATIONS
